and welcome to the website for the Luton & South Beds. Branch of the Motor Neurone Disease Association (MND Association).
We are an independent charity, with a National Office in Northampton and over 80 Local Branches nationwide.
We have the sole aim of serving all those in the area who are affected by Motor Neurone Disease (MND).
This includes people with MND, their carers, family and friends.

Breaking News!

Announced 11.05.09

Collaborative researchers from across the world have discovered a variant in a gene called KIFAP3 that improves survival in people with MND by approximately 14 months

Collaborative researchers from across the world have discovered a variant in a gene called KIFAP3 that improves survival in people with MND by approximately 14 months

Click here for the full story

*******************************************

Less than a year after the last major research breakthrough, collaborative researchers have discovered a new gene mutation that causes a rare inherited form of MND. Find out more at www.mndassociation.org/researchnews

Changes at the Very Top

During 2008 we heard that The Duchess of York wished to stand down as our Royal Patron due to various other commitments but were delighted to hear that HRH The Princess Royal was pleased to take on this role.  There were other changes in that Lembit Opik MP stood down as President, the role he agreed to undertake for two years.  He will continue his work for the Association in the new role as Chair of Patrons.  Prof. Colin Blakemore is now the Association President and he is one of the UK’s most influential and respected scientists.  

Full information of our new Patrons can be found in The News – October 2008.

*********************************************

Read Colin Knight's Story

Colin Knight agreed to be interviewed by a local paper about his experience with MND. The article was published in the Luton edition of the Times and Citizen and you can see the article and a video of his interview by clicking the following link:

http://www.lutontoday.co.uk/todays-choice/VIDEO-Living-with-motor-neurone.5168392.jp

*********************************************

RCDA

Fiona Tuner has been advising and assisting our Volunteer Visitors very well since she became RCDA for the Central Region.   This has been a very large area and National Office decided to appoint another RCDA to work with Bedfordshire, Northamptonshire and Milton Keynes.  We are sorry to lose Fiona but understand we will be able to welcome Rachel Boothman when she takes over in March.

  Read all the latest news on our News Page

-Download our latest News Letter plus opportunities to help your local branch.

Also, to receive a copy of 'The News' just log on to: www.mndassociation.org/thenews

Come and see Elvis!

- yes he's alive and well and performing to raise funds for the MND Association!

 Come and join in a wonderful evening of entertainment starting

with Bob, an incredible singer, who will be singing all your favourites

from the 80's and 90's.

Then we have an Audience with the Amazing Elvis Presley who will entertain and serenade you.

There will also be a great raffle with some top prizes.

Join us on Saturday 13th June 2009 fom 8 'til late at Caddington Sports and Social Club, Manor Road, Caddington.

Tickets are just £5.00 for a guaranteed evening of great entertainment! Contact Wendy Currie on 01582 527438

Elvis Night, Saturday 13th June 2009

Caddington Sports and Social Club

Manor Road

Caddingington

£5.00

MND Association, registered charity No. 294354

The MNDA ONLINE SHOP is currently closed. We apologise for any inconvenience.

Thinking of Christmas already?

If you are at all artisition

If you are at all artistic then look up The News – December 2008. In this you will find details for the 30th Anniversary Christmas Card Design Competition