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  The
Thumbs Up sign represents David Niven's last defiant gesture. It
remains our symbol of hope |
and welcome to the website for the Luton & South Beds.
Branch of the Motor Neurone Disease Association (MND Association).
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The Association is asking Parliament to produce a National Strategy for MND. Our local MP's are being asked to sign an Early Day Motion 198 in Parliament. The Association has set up a petition on their website (www.mnd2010.org) where people can sign up to support the call for a National Strategy. Signing is very easy and could really help. We have also been asked to write to 3 MP's - the Health Secretary Andy Burnham and the Shadow Health Secretaries Andrew Lansley MP (Con) and Norman Lamb MP(LIB Dem). Click here to view 2 sample letters - one to Andy Burnham and one to the Shadow Ministers. You will see that there is a space for any personal comment you may wish to make. Please help by telling as many people as you can about the different ways they can add their voice to the call for a National Strategy for MND. Together we can make MND matter at the general election. *********************** |
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Collaborative researchers from across the world have discovered a variant in a gene called KIFAP3 that improves survival in people with MND by approximately 14 months Collaborative researchers from across the world have discovered a variant in a gene called KIFAP3 that improves survival in people with MND by approximately 14 months Click here for the full story announced 11.05.09
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******************************************* Less than a year after the last major research breakthrough, collaborative researchers have discovered a new gene mutation that causes a rare inherited form of MND. Find out more at www.mndassociation.org/researchnews
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Read all the latest news on our News Page -Download our latest News Letter plus opportunities to help your local branch. Also, to receive a copy of 'The News' just log on to: www.mndassociation.org/thenews
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Changes at the Very Top During 2008 we heard that The Duchess of York wished to stand down as our Royal Patron due to various other commitments but were delighted to hear that HRH The Princess Royal was pleased to take on this role. There were other changes in that Lembit Opik MP stood down as President, the role he agreed to undertake for two years. He will continue his work for the Association in the new role as Chair of Patrons. Prof. Colin Blakemore is now the Association President and he is one of the UK’s most influential and respected scientists. Full information of our new Patrons can be found in The News – October 2008. ********************************************* Read Colin Knight's Story Colin Knight agreed to be interviewed by a local paper about his experience with MND. The article was published in the Luton edition of the Times and Citizen and you can see the article and a video of his interview by clicking the following link: http://www.lutontoday.co.uk/todays-choice/VIDEO-Living-with-motor-neurone.5168392.jp
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MND Connect is more than just a helpline. MND Connect offers people access to a quick route to get advice, practical and emotional support and directing to other services and agencies. This is a service for:
MND Connect is available 9am to 5pm and 7pm to 10.30pm Mondays to Fridays. Calls charged at local rate.
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Telephone: 01604 250505, Registered Charity Number: 294354